Well, this will be my first post at age 35. While things aren’t the easiest right now, I’m happy to be here. More on my birthday later.
I had my cardiologist follow up a little over a week ago. Now mind you I mentioned nothing about running, my primary reason to go there was to go over my 30 day event monitor. We walk in and he says “so sorry about running, I know you were mad” (see do no harm post from early fall/late summer). “Running is bad for you. Healthy guys they go run marathons and die. Bad for knees. (Picture this in thick Japanese accent). Jogging ok 5k maybe 10k but anymore more for Olympians ok”. Ok man we aren’t even here for that. I jog/walk/run 5ks when I can during treatment and I have no urge to discuss my post Lyme remission running plans with this guy. Ok so he asks about my erratic heart rate. I tell him still while I sleep. “So maybe we get 30 day monitor”. Hello that’s why we’re here. We tell him we did this and it’s like him pulling teeth to find results. After he does it just shows more sinus arrhythmia which is normal for my age. Long story short I will be getting a different monitor and I just finished up the at home sleep study he ordered. That was a pain in the tush.
Next up on the doctor front. Need to schedule EEG and MRI for neuro. It finally was approved by insurance but we’re running out of time here and trying to squeeze all this in while hubby is going through a busy work period is proving difficult. Then I’ll have a cardio follow up, a neuro follow up and one last Lyme doc visit in April.
How have I been feeling? Well after my ER visit I was doing really bad. The fatigue was unbearable and the nausea even worse. I also developed some canker sores including one on my tongue that made eating near impossible. Thank God for the extra long weekend because I couldn’t get off the couch really from Thursday-Monday when I felt a little better. Why was this? Who knows? Stress, not going out of town in a month, who knows. Finally on Presidents’ Day the nausea let up a bit and I said ok let’s do something. So I put on my seabands and we went to a festival up in Kernville.
I continued to improve after that finally able to get back out on my walks. That’s another thing that may of set me off, I was trying to walk every day instead of every other. I was able to do chores and enjoy my birthday.
We decided to head up to Kennedy Meadows area to find a little hike. I packed my knee brace, some snacks and NUUN and we went off. On the way we stopped at a small general store, pet a couple puppies talked to a fellow Pats fan and spoke withy the owner of the store. She told us we could find the Pacific Crest Trail off of the campground. Having just read Wild by Cheryl Strayed I was excited. As we set off I was reminded I have a long way to go to regain my physical fitness that Lyme disease has hindered. I listened to my body, took sips of NUUN and rested when I had to. I’ll get back some day to the hiking that I used to enjoy… Strenuous jaunts that included trails where hands were needed or if it seemed to easy I’d jog… Anyway the reward at the end of trail was a beautiful footbridge. I love being outdoors with the family.
Next up running wise? We’re still debating doing the Coaster Run at Knottsberry farm. But first I plan on signing up for Team Sparkle Run for Rhett virtual 5k. Rhett syndrome is a a disorder (not genetic) that mainly affects young girls. It’s a neurological disorder that severely impacts the way they can speak, walk, eat etc. I have no idea what these young ladies go through but having neuro Lyme I know a bit sometimes how it is to feel trapped in your own body. Registration ends tomorrow (2/24) so I urge you to sign up. You can run, walk, roll this whenever until mid April.
Last up: and the winner is: Nicole Cepaitis. Please email: firstname.lastname@example.org do claim your prize. Just reference Valerie @flowingthroughthefight.com
Until next time💚